Behind M.E. Cellar Door…
© Zarynity 2008
The Vintners & Brewers of the world oughta be worried, very worried. As billions of people find themselves falling victim to the neurological nightmare illness of M.E., around 95% of them will find, for some befuddling reason, they just can’t handle alcohol anymore. Not even the wee’est of drams. It goes with the [...]
March 29, 2008
Categories: Activism/Awareness, Side Effects . Tags: Alcohol, cocktails, drinks, Macleay Island, ME/CFS, MIMES, poisoning, taxes, toxic shock, weapons . Author: Pixi . Comments: No Comments
Here is a copy of an unedited group email by Jodi Bassett from A Hummingbirds Guide to M.E.
*please repost widely* *please repost widely* *please repost widely* *please repost widely* *please repost widely*
PLEASE read this paper if you are a M.E. advocate or sufferer and you use or support the terms ‘ME/CFS’ or ‘CFS/ME’…
—–
Problems with the use [...]
March 27, 2008
Categories: ABOUT: . . Author: Pixi . Comments: No Comments
CARE 4 M.E. CENTRES
Are imaginary ~ just like this killer disease…
I am crying as I struggle to type this message through my own weak body. I’m hardly capable of crying anymore, so this is a big deal. Huge. I am so very, very, bloody sad… Why?
Because I know of a young woman with very severe M.E. who is [...]
March 26, 2008
Categories: Activism/Awareness, CARE 4 M.E. CENTRES, Fundraising Ideas . Tags: Care Centres, Charity, Compassion, Corporate attention, Death, Dying, ME/CFS, media, property wanted by donation, Queensland . Author: Pixi . Comments: No Comments
Zarynity (Zarii) Bow-Dern
Moderating Soulblogger for
MIMES ~ Macleay Island M.E. Support On-line Info & Community Site.
Serving the Bay Islands & Redland Shire in S.E. Queensland.
Stuff about me…
Thought this might be a good idea, to save answering more emails about it! I am not a man from Israel, despite my name! In my case, the [...]
March 24, 2008
Categories: ABOUT ME . Tags: ME/CFS, Macleay Island, arthritis, Advocacy, MIMES, Children, Osteoporosis, German Shepherd, Zarynity, GP's, YouTube . Author: Pixi . Comments: No Comments
Life Thief from hell…
The ultimate weapon of mass destruction.
© Zarynity 2008
Or is M.E. the ultimate in karmic payout? It is not irrational, often after a relapse attack, once the mind is lucid enough to contemplate this question. Most people with a long term disabling condition would have wondered at some time or another “Why me?”. This is [...]
March 24, 2008
Categories: How M.E. feels . Tags: dementia, insomnia, M.E., ME/CFS, Myalgic Encephalomyelitis, Pain, relapse, stroke like, Symptoms, theft, tremours, vertigo . Author: Pixi . Comments: No Comments
Through the interesting Satori-5 M.E. site, you can download Dr. Hooper’s DVD for free.
http://www.satori-5.co.uk/1_severe_me/prof_hooper_dvd.html
March 23, 2008
Categories: Myalgic Encephalomyelitis, Theories? . Tags: Dr. Hooper DVD, ME/CFS, Satori-5 website, severe ME . Author: Pixi . Comments: 4 Comments
Not the latest info, but worthy of a mention here:
Research Reveals Common Bacterium Chlamydia Pneumoniae may be Culprit in ME/CFS, FM and MS
You may not have heard much about the common bacterium Chlamydia pneumoniae, pronounced “Kluh-MID-ee-uh New-MOAN-eye-A.” Compared to its notorious sexually transmitted relative, Chlamydia trachomatis, it is an obscure pathogen. But some of the world’s [...]
March 23, 2008
Categories: Research, Theories? . Tags: bacteria, CFS, Chlamydia pneumoniae, infection . Author: Pixi . Comments: 2 Comments
From the Daily Telegraph, 18 March 2008A simple blood test may revolutionise the way we treat patients with ME, reports Bob Ward.
British researchers are close to developing, for the first time, a blood test and potential drug treatments for myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), following groundbreaking work on its genetic [...]
March 23, 2008
Categories: Research . Tags: yuppie flu, hope, ME/CFS Research, blood tests, genetics . Author: Pixi . Comments: No Comments
On 28 Monday April 2008, between 9.50am and 5pm, The Royal Society of Medicine (UK) will be holding a “conference” about the invented psycho-bullshit ‘CFS.’ All the usual devotees will be ranting: Simon Wessely, Peter White, Anthony Pinching, Anthony Cleare, Mansel Aylward (formerly UNUM’s flunkey at the Dept of Work & Pensions, now in charge of the UNUM Centre for Disability [...]
March 22, 2008
Categories: Activism/Awareness, ME/CFS . Tags: Awareness, CFS, Charities, Children, disgrace, Greg Crowhurst, Human Rights, London, M.E., medicine, Protesting, royal, society, Virtual Protest, Wessely . Author: Pixi . Comments: No Comments
Now settle down, close your eyes, take a deep breath and visualise…
Wouldn’t it be amazing, if, out of the blue, Doctor de Nyal totally acknowledged your ”imaginary” Fibromyalgia? Yes, I know, don’t laugh, stay focused now…keep breathing…stop sniggering…
Even after years of telling you it’s all in your mind, you are definitely bonkers, tut tutting and refusing to sign your rather [...]
March 19, 2008
Categories: Fibro matters, General Interest, Treatment Methods . Tags: CFS, Cynicism, Doctors, Fibromyalgia, FM, Humour, Lyrica, M.E., Macleay Island, MIMES . Author: Pixi . Comments: No Comments